All Moms know that we take of everyone and usually put ourselves on the back burner. The reason I started this blog is because I needed a release. So much weighs on my heart and weighs me down, some from my past but mostly just the day in day out of life. I know that I have never gotten over (and I never will) losing my babies. It’s a pain that is hard to describe other than maybe that I walk around this life with 2 holes in my heart. They will never be filled, but I believe I’ve come to terms with the loss. I can’t get my babies back, but they are in my heart always. Thankfully, God gave me my sweet little Chipmunk and I couldn’t love him more.
My son was diagnosed with Sensory Processing Disorder when he was three. He is very picky about fabrics, hates loud noises and crowded areas, does not like certain food textures, likes pools and bathes but hates wet surfaces (rain on door handles, condensation on a cups, etc.). At age 5 he started a private preschool and they said they were equipped to handle Mason’s needs. As a mother, I wanted to come across the table and smack that director, but I knew he deserved a better environment so we started the assessment process with the city and he was approved to attend pre-K in the public school system. I had now entered the world of IEPs (I’d rather go to the dentist) and assessments for services. He was already in therapy privately and the public school system didn’t feel his need was severe enough for most services. His teacher and I had a great relationship and we got him through the year. He was also diagnosed with Autism Spectrum Disorder at the end of the school year.
When he entered Kindergarten more and more behavioral issues began appearing. It was exhausting and I was trying to learn as much as I can and educate my family on his diagnosis so that those closest to him could understand and be there for him. We had meeting after meeting for his IEP all year. He also got a new SPED Teacher (she is a godsend for me) and our son quickly developed a close bond with her. She was like a Mom away from Mom. I was so grateful for her and her input. She remained in close contact with me almost daily which helped me immensely. In January of his Kindergarten school year he developed strep and was so sick. We thought we got rid of it and 3 weeks later he tested positive again. He soon started being afraid of rain and thunderstorms, which had never phased him before. Infact, he loved jumping in puddles and splashing in the rain. Then he was terrified of bugs (no matter how big or small). He stopped going outside and we would literally have to carry him out of the house. He would get mad and hit me, say he hated me and that he wished he didn’t have a mother (that one stung quite a bit). I would break down in tears and my own depression and anxiety was getting worse by the day. He made it through Kindergarten and over the summer we spend a lot of time in doors and going to therapy.
Welcome to 1st grade! He was having so many problems in school and never getting “green days.” His anxiety was getting worse and all my focus and energy was put into finding out what was going on with my little guy. I stumbled across a Facebook post on an Autism page that mention their child being diagnosed with PANDAS (pediatric autoimmune neuropsychiatric disorders associated with streptococcus). It all started making sense. Everything started getting out of control after he had gotten strep in January of last year. I contacted a well know physician who specializes in patients with Autism and by the grace of God (literally a hurricane came and a patient cancelled her appointment with him so he contacted me and got us in to see him) he became our primary physician and also officially diagnosed my son with PANDAS. We started treatment right away and it made a huge difference. This syndrome cause inflammation of the brain, so once that was under control he became calmer and the aggressive behavior practically stopped. He was still restless and disruptive in class so I finally conceded to them putting him on medication and now every day is a green day at school! I’ve now got the IEPs down to a science and the board giggles when I walk into the meetings with my binder and the printed handouts for everyone on what I want accomplished in each meeting! I’m a Mama Bear and I don’t play around with my child’s education.

So in all this going on the past few years, I neglected to take care of myself. I worried so much about taking care of everything else, except for myself! I realize that I eat when I’m stressed and have gained so much weight. I had back surgery last year and neck surgery a little over 3 months ago. I am on 3 different medications for my anxiety and depression and a few others for the nerve pain that remained permanent after the lower back surgery. I also have heel spurs that hurt so bad to walk on and the cortisone shot the podiatrist gave me were off in under 2 weeks. I’m not whining or feeling sorry for myself. I did this to my body by not taking care of it. I guess part of me felt selfish to ever put my needs ahead of anyone else’s. I’m learning it’s time to start taking care of me so I can be a much happier person that can be there for others still, just not to the point that I forget myself! I feel confident in the new doctor that I’m seeing and the direction I’m taking with my life now. It’s going to take time, I know, but I also know that I am capable of doing better for myself. To set a good example for my child, as well!
